Aidan has had some awesome days- Praise God for the good days just as we praise Him for being there during the bad days. The vent is only on at night as a precaution. They have him off his main sedative so is alert and in action :) Diane and Sam now have to figure out how to keep him occupied all day in bed. They do get him out for PT and they had him trying to stand. Go Aidan! Today Diane's good friend Robin and her husband flew in from Washington state to Boston as a surprise visit.
Aidan started to cough up casts (the fibrous tissue that is building up in his airways) today. It has been about two weeks with no sightings of them. It is a blow to Sam so please reach out to her and lets keep her uplifted through this bump in the road.
"It's a long, long road
From which there is no return
While we're on the way to there
Why not share
And the load doesn't weigh me down at all
*She ain't heavy, she's my sister" :)
Love you Sam! We are all there in heart with you.
(no pictures tonight :( the website is doing some maintenance update so I will post some tomorrow)
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