Tuesday, October 26, 2010

The load is heavy



Please continue to pray for strength for the Bennardo family. Oma is now back in Connecticut after experiencing a TIA (a mini stroke) and is being followed by her doctors there. Sam was in the ER today for 5 hours with a migraine. After four bags of fluids and some IV meds she is doing better. We know that "Pop-pop" is struggling being away from his family as he is working to support them. And Diane is still standing by the grace of God. The stress of living in the hospital (they can no longer stay at the house for patient families as there is a 3 month limit...agh!) and riding on the Aidan roller coaster is catching up on them. We pray for them to continue to turn towards God for strength and to call on the Great Burden Bearer when it just seems to heavy to move. 
On a brighter note the "casts"read my last blog and have not shown up since last Sunday! Yeah :) Go Aidan. His lungs were looking not so good again but as of yesterday the x-rays looked better.

We love you Sam, Diane, Rick, and Oma, and are carrying you with us in our hearts all day and everyday.



"Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light." Matthew 11:28-30

Wednesday, October 20, 2010

Casts, casts, go away!

Aidan has had some awesome days- Praise God for the good days just as we praise Him for being there during the bad days. The vent is only on at night as a precaution. They have him off his main sedative so is alert and in action :) Diane and Sam now have to figure out how to keep him occupied all day in bed. They do get him out for PT and they had him trying to stand. Go Aidan! Today Diane's good friend Robin and her husband flew in from Washington state to Boston as a surprise visit.

Aidan started to cough up casts (the fibrous tissue that is building up in his airways) today. It has been about two weeks with no sightings of them. It is a blow to Sam so please reach out to her and lets keep her uplifted through this bump in the road.

"It's a long, long road
From which there is no return
While we're on the way to there
Why not share
And the load doesn't weigh me down at all
  *She ain't heavy, she's my sister" :)

Love you Sam! We are all there in heart with you.

(no pictures tonight :( the website is doing some maintenance update so I will post some tomorrow)

Friday, October 15, 2010

A-List!

As of last night Aidan is now on the transplant list. He has been having very good days. One day he was off the vent for I believe 8 hours! Go Aidan! I love this little boy. He is so amazing. We pray for the family that will be having to make the choice to donate and that by doing so may it bring some comfort in knowing that they are saving a precious little boy. I am confident that God will over rule for what is best for Aidan.
For a boy with half a heart he sure has a lot of love in him! Sleep well tonight buddy. We love you!




"Because he hath set his love upon me, therefore will I deliver him: I will set him on high, because he hath known my name" Psalm 91:14

Tuesday, October 12, 2010

Hello Aidan!



Aidan had a great day yesterday. They had him sitting up watching cartoons and sucking on a sponge pop dipped in Pedialyte. It must have been so awesome to see Aidan being Aidan again.  The doctors turned his vent off for two, four hour trials and he did great! Go Aidan. Today he is having some trach and belly issues but Diane said they were nothing to stress about. No news today from the heart team. 

On a sad note a family they have come to know at Boston Children's lost their 7 month old baby named Sam. Please pray for this family that they are able to turn to God for comfort during this heavy trial. Sam and Diane are living in a place where babies are fighting for every moment. We can speculate that God might have placed them their at this hospital, at this time, not only for Aidan but to be a blessing to others around them. They have heavy hearts today as they grieve with this family.

"Blessed are those who mourn, for they shall be comforted." Matthew 5:4

Saturday, October 9, 2010

Good days :)



Aidan has been having some good days- the last five he has been cast free and chest x-rays are looking better. Today he was off the vent two times for and hour at a time and did great!
The doctors have decided that Aidan is a candidate for a heart transplant. A few more good days and then he will be put on the transplant list. We know that God is in this and we continue to leave Aidan's care in His hands. Since Aidan is on a respirator he will be put at the top of the list.  Hang in there Aidan- you can do this! 
      "The LORD your God is with you,
       he is mighty to save.
       He will take great delight in you,
       he will quiet you with his love... " Zephaniah 3:17

Saturday, October 2, 2010

No more breathing tube


Aidan had his trach placed yesterday. They were able to remove a large cast as well. The doctors said that his esophagus and vocal cords looked good which is great news.

Big hugs for Pop-pop! So glad that Rick is able to spend time with his little Aidan.

Today Aidan has had a rough day with a slight fever and needs our prayers.

"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand."
Isaiah 41:10