An update from Diane
"Aidan is almost 6 weeks post transplant and doing wonderful! We did have a few rough weeks, but he has turned the corner as of this past Monday! The doctor's were very concern that Aidan was in rejection mode, so they threw the "book at him"! Looks like things are now going forward and Aidan is feeling great... On Thursday they removed the last of IV pumps & pole that he has been attached too for over a year! He is free at last! Yesterday in Aidan style he "threw up" his feeding tube, we pray that is the last one for him, he has had 100's of them... He is taking all his meds by mouth and there is a "boat load" of them, he is such a trooper about it, we are so proud of him. Running and playing has now become fun, he loves to be out in the garden feeding the birds and squirrels, they will all weigh 30 lbs. each by the time we leave here! Speaking of leaving... My gut tells me it should be in the next 2 weeks. Aidan has a "Cath/Biopsy" Thursday the 11th, and if all the numbers and pressures look good, I believe they will discharge us the next week. We will stay with Aunt Helen & Uncle Bruce in Shirley, MA for few months (thank God for them!), and then we hope to be able to get back to "Papa Rick" back in Alabama! Oma has been driving into Boston on her own and coming a lot to help, Aidan loves his Oma and always eats so good for her. Oma has made so many friends here and they are always looking for her, she is the "Mayor" of Children's Hospital! I just got off the phone with Aunt Helen and she said her and Uncle Bruce are so excited for us to come, she needs a list of what Aidan likes so she will be ready for him! So blessed we are to have not only my family all around us but also all the of "Chase's" ! This has been a journey that no one could ever prepare us for, and somehow through the grace of God and all the amazing people in our lives we have tromped through it! Our hearts are so full of love to every family member and all our friends to stuck by us through thick and thin... We thank you, we love you all!!! I also need to mention the beautful, smart and loving people here at Children's Hospital who have not only given Aidan the most amazing care, saved his life but also keep Sam & I safe and loved! Children's Boston Hospital Rocks! We will post another update soon when we get to leave...
xoxox, Diane, Sam & Aidan"
We are so proud of you too Aidan! Keep up the great work and let God continue to lead the way :)
"In my anguish I cried to the LORD, and He answered by setting me free" Psalm 118:5
