"I am going for a walk"

After 17 weeks in a hospital bed Aidan decided he wanted to go for a walk. Wearing a diaper and slippers Aidan walked half way down the hallway and back! Go Aidan go! Today was a good day. He has had a rough couple of days with a fever and casts building up. The Lord's timing is perfect and we patiently wait. Keep up the good work Aidan, you are so amazing.

"Be still in the presence of the LORD, and wait patiently for him to act..." Psalm 37:7

Walk in the rays of a beautiful sun

Special love to "Pop-pop's" (Rick) coworkers at Thyssenkrupp Steel. Thank you for all your prayers and support

Team Aidan Shirts

I had the privileged of going to see Aidan, Samantha, Diane, and Rick. It was so good to see him. He was sleepy during our visit but he did give me the best kiss on the cheek! The next day he started to cough up casts and his oxygen levels dropped into the 50s. He is stable now but does have a fever and they have started him on antibiotics.
While I was there Team Aidan shirts arrived. They were made and donated by Samantha's Aunt Peggy in Maine. Diane and Sam are selling them for $10 and will be donating the proceeds to the "resource room" that is in the hospital for families to use. While we were there the resource room staff had made Thanksgiving dinner for the families. If you would like to help Diane and Sam give back to the people that are making bright moments for them in this trial please email me at melindabeever@gmail.com and I will make sure you get one.
Living on the pediatric cardiac intensive care floor is, well intense. I think that God put them there not only for Aidan to receive extraordinary care but so that they can be a blessing to others. Diane helped a mother ,who was alone, say goodbye to her baby. Not only does Diane have the strength to endure this trial, she is helping others around her. "God made me strong" is her response to how she makes it through the day.
Please continue to carry this family in your prayers. It is critical that Aidan can overcome these casts and infection so he can be healthy enough to receive his gift of a new heart. You can do this Aidan! Lean on the Lord.




  "Trust in the LORD with all your heart and lean not on your own understanding;  in all your ways submit to him, and he will make your paths straight." Proverbs 3:5-6

Crusin' outside

I was so excited that I forgot to share the news that Aidan was put back on the list!! Go Aidan! He was put back on about 24 hours after his catheteization and has been doing great since. So good in fact that his awesome nurse said he could go outside today!
A text from Diane: "Aidan just had the best day in 4 months! Music class, went outside and to throw leaves and played with the clowns!"
Glad you had an amazing day little buddy. I am sure you will rest well tonight :)

"The LORD has done great things for us, and we are filled with joy" Psalm 126:3

Cath lab today

Aidan went into the cath lab today to balloon up some arteries and have some other procedures done. This was done to help with his pressures in the heart and the fluid build-up in his sweet little body. Diane said he was a "feisty two year old" this morning, which was a good thing. He was very lethargic yesterday she said. The doctors hope to be able to put Aidan back on the list within 24 hours.
Go Aidan go! You are so amazing buddy. Keep leaning on the Lord. He will guide you through this.


"Finally, be strong in the Lord and in his mighty power.  Put on the full armor of God.." Ephesians 6:10-11

Selah

Godspeed little man, sweet dreams

From Diane:
"Aidan has been put on 'pause' for now. That means until he is better he can't get a heart. Lots of casts, chest infection, and swollen with fluid right now. He is on some strong antibiotics and diuretics so the hope by Monday he will be back on the list."

In the book of Psalms you can find the word selah used in between scriptures. It means to pause. To pause and reflect on the what you have just read and take it in. We need to pray for Aidan and selah in our hearts, reflect on how God has been with Aidan this whole time, and  leave Aidan in God's hands.  We pray for Sam, Diane, and Rick to lean on the Lord and let Him carry them.

Selah Aidan- rest well this weekend. We want to see you back on the A list on Monday!

"Seek the Lord and His strength.." Psalm 105:4

PS Diane wanted me to share a sweet moment that Aidan had:
"Two clowns came to sing to Aidan- they sang "Over the rainbow". Aidan loved it and couldn't take his eyes off of them. He was so tired but with all the strength he blew them a kiss"


 

Feeling blessed

Aidan's new wheels

A text from Diane:
" Aidan had a good night after a long day. He lost his pic line early yesterday. Finally last night after a few tries it is where is needs to be. He is a trooper. Aidan is doing pretty good. He's awake more and looks good. Sam is better, yeah! Swallow study today. Also my family is coming here for thanksgiving. Pop-pop (Rick) will be here on the 20th for a week. We continue to be blessed by our family, friends, the staff here, other parents, and strangers! How loved and blessed we are!"

We are the ones who are blessed to know them. I am sure I am not alone in saying this, when I call to try to be encouraging to Diane, I hang up the phone feeling uplifted. We are grateful that God has put Aidan in our lives and that Sam, Diane, and Rick share this journey with us. Aidan is still waiting for his "gift" and we know that the Lord's timing is perfect- so we wait on Him, trust that He is in this, and He knows how to care for Aidan.


"He says, “Be still, and know that I am God.." Psalm 46:10